Tuesday, December 20, 2016

Who Do You Know That Knows Someone?

I need a doctor. A Lyme literate (LLMD) one to be exact, but I will settle for an IDS in Georgia -- the kind that doesn't get hung up on the controversy between "post treatment lyme" and "chronic lyme". I don't need just any doctor, but one that is up for a challenge of confusing and conflicting test results. One that is accepting new patients and is in network with BCBS PPO. One that listens intently and doesn't believe in diagnosis by exclusion. Someone that understands the repercussions and benefits of every single prescription and supplement that I ingest -- individually and when combined with each other. Someone that is willing to listen to my story and hear all of the facts from beginning to end with the goal of improving my quality of life --- I need a medical professional to tell me what I can do to treat the root of the problem(s) that are causing my numerous symptoms -- not just how to tolerate and manage the symptoms themselves. Help -- who do you know that knows someone?

In the past few months, I have met with 4 specialists (2 internists, a rheumatologist, a neurologist and a team of 3 Infecteous Disease Specialists) -- and they have all admitted that they have done all that they can do at this point, they wish me the best of luck, my condition is "outside of their area of expertise", come back in 3 months -- and in the meantime see one of the other doctors (that is referring me right back to them) or go to the ER.

Comment below if you know anyone that can help me!


  1. I am so sorry!! I wish this was easier! I will pray for you to find someone!!

  2. Message from a friend of mine that went thru the same thing for years: I didn't have a lyme literate but my dr helped me go into remission after 2 yrs. Dr Rayapudi in Cummings North Forsyth Hospital. She is a infectious disease doctor and she was the only one who would help. Praying someone can help you soon.

    1. I have received another recommendation to go to that same doctor! Thank you so much for the help!

  3. Dr. Dave Ou in Atlanta I think is an ID MD, and he knows a LOT about Lyme. I'm super impressed with him, and very few doctors inspire confidence in me after what I've been through! :P I've had Lyme for years and lived in Atlanta but recently moved up to Maryland...now I'm almost wishing I was still down there so I could see him! He has a wait list, I believe, but it may be worth it for you to contact him. You can check out one of his interviews here: https://youtu.be/4i7Ja7LtL74