Friday, February 3, 2017

You Aren't Wealthy Until ...

The new IDS wasn't helpful at all, but they rarely are down here in the South -- at least in my experience. There are so many misconceptions surrounding Lyme disease -- it has been difficult to find someone who knows enough to actually be helpful and also has the bandwidth to accept new patients -- and don't even get me started on insurance. I will admit, this doctor's appointment wasn't nearly as devastating as those in the past, because this was my first appointment that I was symptom free. Oh -- I am still on cloud 9 relishing in every pain-free second! It is one thing to hear a specialist with 30+ years' experience tell you there is nothing he can do when you aren't currently suffering -- it is something completely different when they tell you that and you are suffering from 5-7 severe symptoms a day and have already received the only treatment available.

This disease can be ugly -- it is scary and overwhelming and devastating -- but it has shown me so much beauty. Beauty in others -- like complete strangers that held the door open for me when I didn't have the strength, or the countless number of people that helped me stand up when I couldn't bare the pain on my own. Our support system is filled with the most loyal and loving friends, family and coworkers. My family has been so incredibly supportive, and my husband is hands down sent by the grace of God.

God may not have placed the perfect health care professional in my life (just yet!) -- but he gave me a best friend years ago that later became my husband and vowed to love me in sickness & in health -- and boy did he deliver!

My sweet Shane is the man my parents always prayed I would find -- one that loves me for all of me. He took care of me for days weeks months on end without ever complaining or making me feel ashamed. It was as if he didn't even consider any other option. He avidly researched my symptoms, numerous diseases, supplements and treatments for countless hours. Lifting me in and out of his truck, driving me to a ridiculous number of appointments, carrying me up the stairs, sleeping hand-in-hand with me on the couch when I couldn't muster the strength to even be carried up the stairs, willingly sacrificing sleep, money, social life, work, free-time, himself --- sacrificing EVERYTHING for me. He is the most pure and loving man -- kind and loyal to a fault, and I am forever grateful for his love and dedication!

PS -- He is going to hate me for writing all of this.

1 comment:

  1. hi C. how can i get a hold of you for some insight and help. i just got diagnosed positive yesterday after the 8 years of ongoing symptoms no one could figure out why. i tired to add you on ig. is there anyway i can email or reach you please,.... thanks so much in advance. i just feel so lost and scared and alone. Fif